A few months ago I met with a genetic counselor for the second time. For those who don't know, I'm BRCA2 positive, which means based on family history and this gene mutation I have, I will likely get breast and/or ovarian cancer by the age of 60. Damn. That's a lot to take in. That's a lot to process. Because when I originally found out, I was 22. I remember saying I'll worry about this when I'm 30. It's weird because back then, 30 seemed so far away. Like I'd never actually get there. Well, now I am and it's real. I think that's the hardest part to deal with. Because sooner rather than later, I have to do to something about it. It's like, do I undergo preventative surgery and remove my breasts and ovaries —the things that make me feel like a woman. Or, do I risk it and wait? I've always said I'd have the surgeries. It's just time crept up and now it's here. I have some big decisions to make and I don't feel ready. Are we ever though? Here is what I want you to know.
Dear Food. For years I restricted you and then binged on you —part of me struggling to give myself enough of you and the other, demanding I get rid of you. I know so much more now than I did when my eating disorder (ED) first started. But it still creeps up. Who am I kidding though? Myself probably. Because I spend the majority of my day either feeling fat or obsessing about how much I weigh; trying to keep my P.T.S.D. induced flashbacks at bay. Whether I'm body checking, on the scale or trying not to open the flood gates, sometimes I eat even when I'm not hungry. I say flood gates because once I start, I find that it's hard to stop. So if I don't start, I don't have to worry about not stopping. A lot of people say, one bite won't hurt. But for me it does. Because I can't just eat one. Because I need the whole thing. I like foods that take a while to eat. Because I love eating. At the same time, I hate how this shit makes me feel. And yes, I know we need food to survive. But when I'm eating and eating and eating, I don't want to stop. And when I don't stop, afterward, I'm full. Really full. Too full. I have to lay down. That's usually when the food shame begins. Because my brain starts talking shit about how gross I am. Why did you eat that, Macey? The thing is, I know about trauma, dissociation, and how bingeing can’t be “fixed” with restriction. I know all this crap is interconnected. But I do it anyway. The worst part is —when I restrict and then finally eat, I tend to go overboard. Binge. Because I basically starved myself all day. So when I eventually allow myself to eat, I'm so excited that I can't stop. I need everything. So I eat everything. And then I feel bad. Shame. So I tell myself I won't eat a lot tomorrow, which usually turns to nothing. Restricting and then binging. It's the same thing all over again. And this is how it goes.
I'm sure at this point in your life, you've been sick at least once. When that happens, normally you have two choices. You either go to the doctor for some type of antibiotic or you sleep it off until you feel better. But what if you never got better? What if that cold or flu never went away? What if those temporary aches and pains and feelings of fatigue were permanent? What if it got worse? Like when the winter blues turn into a full-blown state of depression and you can't find a way to see light at the end of the proverbial tunnel? What then? Seriously. Imagine the anxiety of knowing what you have was constant. Imagine what it would be like if that doctor of yours said there was no cure, and that it would, in fact, be a part of your life forever? Now, envision trying to explain all of this to your friends, family, and co-workers. How do you describe this shit in a way they'd understand? Because you look perfectly fine —on the outside that is. How would you cope with having a chronic, invisible illness? Would you be deemed lazy or even crazy? Would you be treated differently? Would you be excluded from activities or on the contrary be so tired that you continuously say no to those friendly invitations? At that point, would it start hindering your relationships, both personal and professional? The short answer, yes. Absofuckinglutely. Because when you break a bone, your physical disability is apparent to the world. Friends, family, and coworkers can see the cast on your arm and know without a doubt that you're sick. “Get some rest,” they’d say in a concerned voice. “You don’t look well.” But that’s the odd thing about not feeling well —you don’t always look the part. So yeah, I'm not the girl I used to be and here are four reasons why.