The Best Prevention is Early Detection: My BRCA2 Story

A few months ago I met with a genetic counselor for the second time. For those who don't know, I'm BRCA2 positive, which means based on family history and this gene mutation I have, I will likely get breast and/or ovarian cancer by the age of 60. Damn. That's a lot to take in. That's a lot to process. Because when I originally found out, I was 22. I remember saying I'll worry about this when I'm 30. It's weird because back then, 30 seemed so far away. Like I'd never actually get there. Well, now I am and it's real. I think that's the hardest part to deal with. Because sooner rather than later, I have to do to something about it. It's like, do I undergo preventative surgery and remove my breasts and ovaries —the things that make me feel like a woman. Or, do I risk it and wait? I've always said I'd have the surgeries. It's just time crept up and now it's here. I have some big decisions to make and I don't feel ready. Are we ever though? Here is what I want you to know.

I Eat Even When I’m Not Hungry And I Just Realized Why: Binge Eating, Emotional Eating and How This Shit Relates Back To Trauma

Dear Food. For years I restricted you and then binged on you —part of me struggling to give myself enough of you and the other, demanding I get rid of you. I know so much more now than I did when my eating disorder (ED) first started. But it still creeps up. Who am I kidding though? Myself probably. Because I spend the majority of my day either feeling fat or obsessing about how much I weigh; trying to keep my P.T.S.D. induced flashbacks at bay. Whether I'm body checking, on the scale or trying not to open the flood gates, sometimes I eat even when I'm not hungry. I say flood gates because once I start, I find that it's hard to stop. So if I don't start, I don't have to worry about not stopping. A lot of people say, one bite won't hurt. But for me it does. Because I can't just eat one. Because I need the whole thing. I like foods that take a while to eat. Because I love eating. At the same time, I hate how this shit makes me feel. And yes, I know we need food to survive. But when I'm eating and eating and eating, I don't want to stop. And when I don't stop, afterward, I'm full. Really full. Too full. I have to lay down. That's usually when the food shame begins. Because my brain starts talking shit about how gross I am. Why did you eat that, Macey? The thing is, I know about trauma, dissociation, and how bingeing can’t be “fixed” with restriction. I know all this crap is interconnected. But I do it anyway. The worst part is —when I restrict and then finally eat, I tend to go overboard. Binge. Because I basically starved myself all day. So when I eventually allow myself to eat, I'm so excited that I can't stop. I need everything. So I eat everything. And then I feel bad. Shame. So I tell myself I won't eat a lot tomorrow, which usually turns to nothing. Restricting and then binging. It's the same thing all over again. And this is how it goes.

To All The 1989ers: This is Me Saying Goodbye to My Twenty-Something Self

This is weird. I never thought I'd be saying this. I never thought I'd have to write this. But here I am. Because being a twenty-something has been a part of me and my identity for so long. I swear it feels like I'm saying goodbye to an old friend I’ll never see again. I can't help but be a little sad. Way too nostalgic. And definitely grateful for all of my experiences. Because I'm a totally different person at 29 than I was at 20. I guess you could say, "That's growing up." Because I'm more me than I've ever been. I like to think of myself as vulnerable, open and real. I think I've accepted most of my imperfections. Because today, I wear that shit with pride. I used to try to hide it —making it seem like I was this happy girl all the fucking time. And let me tell you, it was exhausting. So yeah, because of that and everything I went through, I'm free. But it's still weird. Because it seems like yesterday and a lifetime ago all at the same time. In a way, it's like another me (even though it's not). I bet for most that's probably true. For me, I've spent the last 10 years trying to figure out —not only what I like and what I don't like, but also, who I really am as a person and what life means to me. It was hard. It still is. I had some pretty dark and shitty days —most I’d like to forget. It's just, I can't deny that I learned a lot. Because all that is somehow apart of the puzzle that has created who I am today. And the girl I am isn't who I thought I'd be. But I think that's a good thing. Still, I find it extraordinarily challenging to welcome my 30's —partly because I look like I'm 22. And yeah, that's awesome (don't get me wrong), but it comes at a price of never quite believing I am the age I am. Because I'm usually treated like I'm so much younger. That said, it’s hard to accept that I'm leaving a particular decade —when the majority of people I encounter, think of me as just entering the age I was 10 years ago. Damn. That hurts to say out loud. So as I think back to how things used to be, I can't help but reminisce about twenty-something me. This is what you need to know.

Living with an Invisible Illness & Mental Health Ish: Because I’m Not The Girl I Used to Be and Here Are Four Reasons Why

I'm sure at this point in your life, you've been sick at least once. When that happens, normally you have two choices. You either go to the doctor for some type of antibiotic or you sleep it off until you feel better. But what if you never got better? What if that cold or flu never went away? What if those temporary aches and pains and feelings of fatigue were permanent? What if it got worse? Like when the winter blues turn into a full-blown state of depression and you can't find a way to see light at the end of the proverbial tunnel? What then? Seriously. Imagine the anxiety of knowing what you have was constant. Imagine what it would be like if that doctor of yours said there was no cure, and that it would, in fact, be a part of your life forever? Now, envision trying to explain all of this to your friends, family, and co-workers. How do you describe this shit in a way they'd understand? Because you look perfectly fine —on the outside that is. How would you cope with having a chronic, invisible illness? Would you be deemed lazy or even crazy? Would you be treated differently? Would you be excluded from activities or on the contrary be so tired that you continuously say no to those friendly invitations? At that point, would it start hindering your relationships, both personal and professional? The short answer, yes. Absofuckinglutely. Because when you break a bone, your physical disability is apparent to the world. Friends, family, and coworkers can see the cast on your arm and know without a doubt that you're sick. “Get some rest,” they’d say in a concerned voice. “You don’t look well.” But that’s the odd thing about not feeling well —you don’t always look the part. So yeah, I'm not the girl I used to be and here are four reasons why.

Love Me Today, Leave Me Tomorrow: Because Misery Still Loves Company and I Was Still Stuck on Stupid

I’ve been sitting here. Trying. Trying to figure out how to start this thing. But I’m at a loss. Because every time I try to write something, I get stuck. And then I have to stop. It's like even though I’ve moved past all of this —because I really am over it, I have to admit that sometimes it still kind of hurts. It's a strange hurt. Because even moments that were really fucking funny, it's like somewhere else inside, I don't feel like laughing. Because when I do start to write, everything —funny and not so funny, comes flooding back. As I shut the laptop. I can’t. That's when I ask myself, "What am I trying to say?" Truth is, I don't know. So I stay stuck in this strange flush of nostalgic imagery and as a slight tear streams down my face, I picture the girl I used to be. I remember how it started and I remember how it ended. I wish I could say that I don't know how things got so messed up. But I do. Because I just spent the last three years in and out of treatment. I had been home for less than a month and already, I was getting high again. I was hoping to find a way to stop before I got caught. So yeah, there were a lot of things this girl was wishing for. Mostly, that Aiden wouldn't be the bad influence everyone said he'd be. But I was wrong about that. I was wrong about a lot of things. Because two addicts in early recovery trying to make a relationship work can be a beautiful thing. It's like, he knows what I'm going through, how I'm feeling, and why. But it can also be so fucking detrimental for everyone's recovery. Because if one of you wants to get high, chances are, the other one will too. That's literally what happened to me. Because I wanted to get high a little more than I wanted to stay clean. And Aiden. I also wanted him who definitely wanted to get high. And that right there is how shit got so twisted. Because someone needs to be the good guy. The strong one. The one who says, "No. We're not doing that. And if you are, then I'm not doing you. Bye." But misery still loves company. And neither of us were strong enough in our recovery to be strong like that for each other. So yeah, we ended up bringing ourselves down together. And this is how it happened.

Because This Shit Never Really Leaves You: Post-Traumatic Stress Disorder and How I Ended Up at Rock Bottom For The 1.9th Time

It all started because I had nowhere else to go. Well, technically I was still a resident at that Delray Beach halfway house I had been living at for the past few weeks. It's just, my tenant status was about to erupt. And my world was about to go up in smoke. As if it hadn't already. Because that's just it. It was all smoke and mirrors. You can only fake it 'till you make it for so long. And after failing a surprise drug test, instead of getting kicked out (which is normally how it goes down), the house manager said she saw something in me that she didn't see in anyone else. So she decided to put me on probation rather than kicking me to the curb. You'd think I would have been happy. I guess a part of me was. But for some reason, I was pissed. Truth is, I was in a full-blown relapse. Wanting —turned into doing and before I knew it, I was doing it every single day. It didn't help that my new boyfriend was a straight up junkie. Like between the two of us, we couldn't fucking stop. And then, the other night like a few days ago, when I couldn't fall asleep, instead of counting sheep, I spiraled. It felt like I was back there on that awful fucking night. Long story short, I found an article of this guy I used to know. And I say that with a mouth full of rage. Because this particular guy was just sentenced to 35 years in federal prison. What did he do? Well, he raped this 23-year-old girl. And he also raped me. It's not exactly what you're thinking. I'm sorry to say it's probably worse. So when I found out that he's been doing the same shit this entire time to even more vulnerable girls —well, it pissed me off even more. The worst part is, I've never really talked about this shit like ever. I don't even like to think about it. But seeing his photo and his victim's description of the attack, it made me even madder that I didn't speak up before. Because everything she said —like her description of the event, it gave me the fucking chills. Because it's quite literally what happened to me. Here's what you need to know.

The Night I Choked On a Piece of Meat Meeting My Boyfriend’s Mom For The First Time: And When I Couldn’t Breathe, I Was Given The Heimlich —Because I Really Was Choking, & Then, That Chunk of Beef Goes Flying, Eventually Landing On His Mom’s Freaking Lap

I don't understand how something so bad, can feel so good? At least it used too. Because when shit was good, it was real good. But when it was, it was really bad. I’ll never forget the first time I met Aiden's mom. I don't think she will either. Actually, I know she won't. Like if I was nervous about not being memorable, I didn't have to be. I definitely nailed that one. And then some. Was that a good thing? That was yet to be determined. I remember knocking on Aiden's front door. I remember walking in and asking, does anyone need help? Maybe I'd bond with his family over dishware and table settings. Because it was your standard meet the parent's dinner. It started off with your typical clichéd pleasantries —a.k.a. a bunch of small talk; filled with vivid introductions —telling Aiden's mom how much I adore her son. I wanted them all to get a sense of who I was. More importantly, I wanted to imply that she did a wonderful job raising a wonderful kid. For the record, that wasn't totally true all of the time. But she didn't need to know that. Hey, I wanted to make a good impression. For the record, an impression was certainly made. Because Aiden's mom said, she was happy he found such a good girl like me. So yeah, thus far, the evening was going way better than I thought. It's just, I wasn't as graceful as I wanted to be. Because the night ultimately ends with me running away from the dining room table crying. It was more of a laughing cry. But yeah. There were definitely tears. Here's how it all went down.

Chasing Highs, Chasing Guys & Everything In-Between: This is What Happens When You Pursue Narcotics Instead of Recovery

I was never the type to chase a guy. Things with Aiden were going pretty well. So, I didn't really have too. But then, things took a turn. Not yet though. There was still some time in-between. But when it all came to a head, it's like; how did I not see this coming? Because we were getting high nearly every other day. But I was getting away with it, which made it all seem OK. As if me not getting caught justified our addict behavior. It didn't. I see that now. I was in over my head. But I couldn't understand that back then. Even if I did —because I'm pretty sure that's the case, I wouldn't let myself go there. I remember living with this awful feeling in the pit of my stomach. My anxiety hit like a permanent hot flash. The truth struck like a chain of explosives. Was today the day? The day my mom would decide to drug test me? That was yet to be determined. Because I wasn't sure how long I could keep everything up. It's just, I knew I couldn't call it quits either. Like I said, in over my head. Because once I started, I quite literally couldn’t stop, which is around the time I lost control. Because that's just it. I had the will to do good but not the power. I mean, how can you stay sober when the guy you're seeing always wants to get high? Because relationships are hard enough. They carry enough shit on their own. But when you add in maintaining your sobriety while trying to maintain a healthy relationship —well, it's nearly impossible for you to do both. So that's where I was at. And this is how it all went down.

Early Recovery, Relapse & Relationships: Here’s What Happened When I Started Dating Again After Spending Eight Months in Rehab

He was supposed to come over while my mom was at work the following day. I was already breaking the rules. What the fuck, Macey. I don't know what I was thinking. The truth is, I probably wasn't. There was just something about him. Something about him that made me lose control. But I wasn't about to let him know that. I knew how to work it. So at the last minute, I pretend something came up. And I ditch him. Not in a mean way. I was playing hard to get. I guess I played too hard. Because this was around the time he thought I wasn't interested. And I shouldn't have been. But I was. I was also eight months clean, which doesn't really count —seeing that most of my sober time was spent in rehab. There's no temptation when you're behind bars. The true test comes when you transition back into reality. Would I pass? Or, would I fail? I choose the ladder. Because I had been home for less than two weeks and me wanting to get high had already turned into a full-blown relapse. So yeah, that's around the time I lost control. And that's why they say not to date anyone when you're in early recovery. On one hand, yes, it's entirely possible for a romantic relationship to succeed when you're newly sober. However, studies show that most intimate relationships that occur within the first year of sobriety tend to take a turn for the worse. From what I'm about to tell you, I think you'll see why. It's just, if you knew what I was really up too, you'd know I wasn't actually sober anymore. Because what I haven't mentioned is how Aiden and I met. Here's what you need to know.

Everything & Nothing: This is What Depression Feels Like

Do you ever feel flat? Dull. Lifeless. Uninspired. It's like, you're not necessarily sad. Because nothing actually happened to justify this type of darkness. It's just, you're not happy either. For me, when this happens —because it does, in fact, creep up, it literally feels like something in my brain is missing. Neurotransmitters probably. It's like sometimes, I want to cry. But I can't. And I don't actually want too. But it feels like I should. That's depression for you. Because it's not always sadness. I mean, yeah, it is. But it's so much more than that. Because it's not going to fit inside society's box. Because you can be laughing one second and wanting to stay in bed all day the next. It's like you want to do the things you love. The things that used to bring you joy, but you can't make yourself get there. So yeah, depression is misunderstood. Depression is also a serious mental illness that can interfere with a person's life. It can cause long-lasting intractable feelings of hopelessness. A loss of interest in shit you used to like is usually how it starts. But what does it actually feel like? Let's find out.

Ask Me No Questions & I’ll Tell You No Lies: Because I’m Still at Bottom & This is Where I Last Left Off

I guess I thought I was just too far gone. What’s the point anyway? But there was. There always is. If you remember from a few posts back, I was faking it as a healthcare recruiter —my first official post-graduation job. Employee by day. Drug addict at night. Eventually, though, those two worlds collide. When I decide to pick up more drugs instead of going back to work, I end up getting fired. As if I didn't see this coming. Because I wasn’t as good as my boss originally thought I’d be. I knew why. But she didn’t. And that’s the point. “You have so much potential, Macey," she said. Potential I wasn't using; I was using pills instead. I was also using my lunch break to score those pills. Because I had to have something to snort if I wanted to get out of bed. But I didn’t work too well on them either. I remember falling asleep multiple times in the bathroom. "Where’s Macey?" That’s when shit got really bad. Bad enough to accept an offer I should have refused, which initiated a chain of events that really fucked my world. That's the easiest way to put it. From one proposition to another, I became the person I said I'd never be. Here's what happened to me.

Apparently, Rock Bottom Has a Basement Because When I Thought I Couldn’t Sink Any Lower, I Did: Here’s How It Went Down

I was physically, mentally, and emotionally deteriorating. I had never been this depressed before. I didn’t even look like me anymore. And I hated the person I had become. But I wasn’t willing to change or do anything about it. I'd only complain. And then I'd get high. You could count on me for that. It's just, I'd only get like this whenever I was running low. So I made sure that didn't happen very often. As a result, I dug myself into a pretty big black hole. Rock bottom as they call it. There was no way out. There was no light either. Well, I could think of one. And it came from the foiled reflection whenever I'd smoke another pill. What the fuck was I going to do? This time around, I had no clue. On top of everything, I was pretty much in denial. Because I wouldn't let myself go there. As you know, I'd get high instead. I was literally obsessed with those things. My pills. And it nearly killed me. Because eventually, I became willing to do just about anything to get and stay high. From one job to another, I schemed my way in and out; until there was nothing left. Until there was nothing left to do but sell my damn dignity. Essentially, that's what I had been doing the entire time. I mean, you don't go from 130 pounds to 87.5 because you're healthy. I wasn't healthy. I didn't look healthy. At first, I could hide it. It wasn't that noticeable. But after a year or so of the same shit different day, I remember my dad saying I looked like a freaking cancer patient. And still, I insisted I was fine. I just haven't been as hungry, I'd say, which was true. Except, I left out why. Because I'd replace my meals with pills —hunger was more of an afterthought. Somehow though, I managed to get by. Well, until I didn't. Here's what you need to know.

Evicted, Afflicted and Majorly Addicted: Here’s How I Ended Up At Rock Bottom For The First Time

It was February 2012. And my roommate just evicted me. I had 24 hours to get the fuck out. What was I going to do? There was only one thing. I'd have to beg my sister to let me stay with her. At least until I figured out a more permanent solution. Because I couldn't live with her, in the state I was in, for too long. I could keep up appearances but only for a little while. I mean, she knew what I looked like at my best. And I was anything but that this time around. Like when I first moved to Boca, I stayed with her. But that was when I was functioning. You know —like a functioning addict. It's just now, I was a GOD damn mess. I didn't even recognize myself anymore. I wasn't the happy girl I used to be. I hadn't been in years. My skin, pale. Face, sunken. Eyes, blank. The mere thought of who I had become filled my insides with terror. But no one knew that. I made sure of it. Because whenever I'd get high, which was most of the time, I was on top of the world. I could do anything I wanted. I certainly didn't need anyone either. These drugs became my best friend (my only friend) and my worst enemy. It's confusing, I know. Because if I wasn't fucked up, I couldn't do anything at all. Or, at least that's how it felt. Because once that feeling faded (it always does), I'd feel more alone than ever, which is why I became willing to do just about anything to make sure that didn't happen. And that's how I found myself at rock bottom for the very first time.

Because We’re Confined, Only By The Walls We Build Ourselves, & This Girl Was Finding Her Way Out: In The Aftermath Part Two

It was nearly 3 a.m. and I couldn’t sleep. I’d toss and turn and remanence. Unwillingly. I had gotten pretty good at this whole insomniac thing. For once though, I didn’t want to be good. But I was trying. I was trying a lot of things. I was trying to forget, trying to forgive, and trying my best to move on. It’s just, sometimes, your best isn’t enough. I know I shouldn’t be so hard on myself. But like I said, I was trying. So yeah. I wish I could tell you after I escaped things went back to normal. I wish I could tell you I woke up every morning with a new found motivation to get things right. And I wish I could say that I wasn’t still reeling the loss of everything in between. Because that would be a lie. I mean, I was free. That was true. I was living with my dad and his roommate’s family in Naples, Florida. I was safe. I was sober. But it was far from over. This is how it goes.

There is No Way to Happiness, Happiness is The Way: So Stop Apologizing, Stop Waiting & Enjoy Life Right Now

Sometimes happiness is staying in with a gluten-free pizza pie and Netflix. Like Netflix and chill but literally. Because most people search for happiness outside of themselves. I know I did and admittedly, sometimes I still do. But that's a mistake. And I'm trying to stop. Because happiness is something that you are. It comes from the way you think —not what you have or even who you have. It's all about our insides. Except, it's harder than you might think to break these patterns. Maybe you want to be happy but you keep waking up doing the same things that continuously make you miserable? The thing is, if we have time to feel like shit, complain and sift endlessly through notifications and newsfeeds, then we have time to meditate, journal, and do something about it. But normally, we just do what we're used to doing and the cycle goes on. Not today. Not anymore. So here's the final segment of my series on life lessons and seven things I think you should know.

Attitude & Perspective are Everything: Because When You Change The Way You Look at Things, The Things You Look at Change

I don’t remember saying no because I don’t remember anything. After he was done, I remember finally passing out. I always felt safe when I slept but not tonight. I have a blurry memory of him getting back on top of me. As if he didn’t do enough. But the damage was done. There was nothing I could do about it now. And that pissed me the fuck off. The thing is, shit could have changed at any given moment. Because today, I'm OK. I'm OK even though all that bad shit happened. I can't erase any of it. I never could. No matter how high I got. No matter how far I tried to run. It's never going away. Like I could still be sitting in all that misery. All that hurt. And I did. I sat in it. I sat it in for a while. But then I decided to get up. Because things are never so bad that they cannot be undone. So from the girl who dug herself out of multiple rock bottoms, here are five more life lessons I think you need to know.

Fast Friends & Fake Love: I Was Fiending for Freedom, Although Straight-Up Fiending Is Probably More Accurate

It was Fall 2012 and I was officially free —at least, my version of it anyway. I had just landed at the Philadelphia airport after spending eight months in Savannah, Georgia. If you remember from a few posts back, I was a resident at this Christian rehab. We called it the Mission a.k.a. Mission Teens. It was hard. Like really hard, which was probably a good thing. But it didn't always feel good. Most of the time, it felt like I was going to be there forever. Nope. I was irrevocably free. Nearly an entire year went by and now, just like any other girl, I was waiting for my mom to come get me. Truth is, I was anything but that. I hadn't been normal in close to a decade. So yeah, it was rather strange getting off the plane. I recall walking to baggage claim. I remember thinking this was it. I left that place under the impression, I'd stay on the straight and narrow. I thought I wanted too. And maybe I did but this is where you're about to learn sometimes, that's not enough. Because you are who you hang out with and I was on my way to hell. Between reconnecting with old friends and making new ones, my sobriety was about to be tested. Would I pass or would I fail? And would I even care? Here's how it all went down.

From 20-Something to Nearly 30: This is What I’ve Learned

Oh, if I could go back in time. Oh, the things I'd tell my younger self. Only recently have I really come into my own. I used to be this wet blanket. A people-pleaser with no voice. I'd apologize for everything. I'd say sorry for saying sorry. I'd agree —even if I didn't for fear of rejection. Not anymore though. I don't know when it all clicked. But when it did, it did. And now, I want to share some things I've learned over the last decade. About myself. About life. About everything. Because nothing is what it seems. Nothing really goes according to plan. I had this picture in my head of who I thought I was. Who I thought I'd be. Of what life would turn out like. Why do we put such high expectations on ourselves? And why can't we be content with what we have instead of spending the precious moments we do being sad about something we made up in our heads that we thought we needed? Most of the time, the universe has a way of straightening things out far better than we ever could. So, from 20-something to nearly 30, this is what I've learned.

10 Years in The Making: This is What it Feels Like Living With Endometriosis

I've been complaining of pain for a while. Honestly, though, it's hard to put into words exactly how I feel and I think that's the problem. Because I don't know where to begin. Because for the past few months, I didn't know what was wrong with me. I knew something wasn't right. I mean, it's not normal to feel sick all the time. But after visiting multiple doctors —all telling me I was fine, why wouldn't I believe them? They're the ones with a medical degree, right? It's just this thing is really hard to figure out. Did you know 10 years is the average length of time it takes to get a diagnosis? That 68 percent of women are initially misdiagnosed with another condition? Oh, and that 50 percent of women with endometriosis also experience infertility? I didn't. What I do know is that it's exhausting. It's hidden. Not seen. Not talked about. Embarrassing. But it's not —at least it shouldn't be. Except, it is according to society. Not anymore though and definitely not here.

Type One Confessions: I’m Tired & Sometimes I Wish More People Understood Why

Sometimes I feel as if I’m a failure at a disease I never asked for —something I could have never prevented. Most days, yeah. I look like everybody else. But I’m not. I want to feel normal. I don’t want to be different. But I am. Every single morning, I get out of bed just like you, but my routine is probably different than yours. I mean, how would your life change if you were diagnosed with a life-threatening illness that you were told was incurable? For me, I’m tired. I’m tired of having to prick my finger every time I want to leave the house or do anything for that matter. I’m tired of worrying that maybe one day, I will not wake up. Because yeah, there’s a chance, I won’t make it past a certain age because of some diabetic complication. Oh and, I’m tired just thinking about how tired I am. But no one really notices. No one actually wants to talks about it. But I do —even though, most can’t understand. No one understands because you don’t until you do. You don’t because you don’t have too —until it’s you. Well, now it’s me. I was never good at math but now I have to be. And even though, it's apart of my new normal, I don't think I'll ever get used to it. So this is what I want you to know.