A few months ago I met with a genetic counselor for the second time. For those who don't know, I'm BRCA2 positive, which means based on family history and this gene mutation I have, I will likely get breast and/or ovarian cancer by the age of 60. Damn. That's a lot to take in. That's a lot to process. Because when I originally found out, I was 22. I remember saying I'll worry about this when I'm 30. It's weird because back then, 30 seemed so far away. Like I'd never actually get there. Well, now I am and it's real. I think that's the hardest part to deal with. Because sooner rather than later, I have to do to something about it. It's like, do I undergo preventative surgery and remove my breasts and ovaries —the things that make me feel like a woman. Or, do I risk it and wait? I've always said I'd have the surgeries. It's just time crept up and now it's here. I have some big decisions to make and I don't feel ready. Are we ever though? Here is what I want you to know.
Dear Food. For years I restricted you and then binged on you —part of me struggling to give myself enough of you and the other, demanding I get rid of you. I know so much more now than I did when my eating disorder (ED) first started. But it still creeps up. Who am I kidding though? Myself probably. Because I spend the majority of my day either feeling fat or obsessing about how much I weigh; trying to keep my P.T.S.D. induced flashbacks at bay. Whether I'm body checking, on the scale or trying not to open the flood gates, sometimes I eat even when I'm not hungry. I say flood gates because once I start, I find that it's hard to stop. So if I don't start, I don't have to worry about not stopping. A lot of people say, one bite won't hurt. But for me it does. Because I can't just eat one. Because I need the whole thing. I like foods that take a while to eat. Because I love eating. At the same time, I hate how this shit makes me feel. And yes, I know we need food to survive. But when I'm eating and eating and eating, I don't want to stop. And when I don't stop, afterward, I'm full. Really full. Too full. I have to lay down. That's usually when the food shame begins. Because my brain starts talking shit about how gross I am. Why did you eat that, Macey? The thing is, I know about trauma, dissociation, and how bingeing can’t be “fixed” with restriction. I know all this crap is interconnected. But I do it anyway. The worst part is —when I restrict and then finally eat, I tend to go overboard. Binge. Because I basically starved myself all day. So when I eventually allow myself to eat, I'm so excited that I can't stop. I need everything. So I eat everything. And then I feel bad. Shame. So I tell myself I won't eat a lot tomorrow, which usually turns to nothing. Restricting and then binging. It's the same thing all over again. And this is how it goes.
I'm sure at this point in your life, you've been sick at least once. When that happens, normally you have two choices. You either go to the doctor for some type of antibiotic or you sleep it off until you feel better. But what if you never got better? What if that cold or flu never went away? What if those temporary aches and pains and feelings of fatigue were permanent? What if it got worse? Like when the winter blues turn into a full-blown state of depression and you can't find a way to see light at the end of the proverbial tunnel? What then? Seriously. Imagine the anxiety of knowing what you have was constant. Imagine what it would be like if that doctor of yours said there was no cure, and that it would, in fact, be a part of your life forever? Now, envision trying to explain all of this to your friends, family, and co-workers. How do you describe this shit in a way they'd understand? Because you look perfectly fine —on the outside that is. How would you cope with having a chronic, invisible illness? Would you be deemed lazy or even crazy? Would you be treated differently? Would you be excluded from activities or on the contrary be so tired that you continuously say no to those friendly invitations? At that point, would it start hindering your relationships, both personal and professional? The short answer, yes. Absofuckinglutely. Because when you break a bone, your physical disability is apparent to the world. Friends, family, and coworkers can see the cast on your arm and know without a doubt that you're sick. “Get some rest,” they’d say in a concerned voice. “You don’t look well.” But that’s the odd thing about not feeling well —you don’t always look the part. So yeah, I'm not the girl I used to be and here are four reasons why.
It all started because I had nowhere else to go. Well, technically I was still a resident at that Delray Beach halfway house I had been living at for the past few weeks. It's just, my tenant status was about to erupt. And my world was about to go up in smoke. As if it hadn't already. Because that's just it. It was all smoke and mirrors. You can only fake it 'till you make it for so long. And after failing a surprise drug test, instead of getting kicked out (which is normally how it goes down), the house manager said she saw something in me that she didn't see in anyone else. So she decided to put me on probation rather than kicking me to the curb. You'd think I would have been happy. I guess a part of me was. But for some reason, I was pissed. Truth is, I was in a full-blown relapse. Wanting —turned into doing and before I knew it, I was doing it every single day. It didn't help that my new boyfriend was a straight up junkie. Like between the two of us, we couldn't fucking stop. And then, the other night like a few days ago, when I couldn't fall asleep, instead of counting sheep, I spiraled. It felt like I was back there on that awful fucking night. Long story short, I found an article of this guy I used to know. And I say that with a mouth full of rage. Because this particular guy was just sentenced to 35 years in federal prison. What did he do? Well, he raped this 23-year-old girl. And he also raped me. It's not exactly what you're thinking. I'm sorry to say it's probably worse. So when I found out that he's been doing the same shit this entire time to even more vulnerable girls —well, it pissed me off even more. The worst part is, I've never really talked about this shit like ever. I don't even like to think about it. But seeing his photo and his victim's description of the attack, it made me even madder that I didn't speak up before. Because everything she said —like her description of the event, it gave me the fucking chills. Because it's quite literally what happened to me. Here's what you need to know.
He was supposed to come over while my mom was at work the following day. I was already breaking the rules. What the fuck, Macey. I don't know what I was thinking. The truth is, I probably wasn't. There was just something about him. Something about him that made me lose control. But I wasn't about to let him know that. I knew how to work it. So at the last minute, I pretend something came up. And I ditch him. Not in a mean way. I was playing hard to get. I guess I played too hard. Because this was around the time he thought I wasn't interested. And I shouldn't have been. But I was. I was also eight months clean, which doesn't really count —seeing that most of my sober time was spent in rehab. There's no temptation when you're behind bars. The true test comes when you transition back into reality. Would I pass? Or, would I fail? I choose the ladder. Because I had been home for less than two weeks and me wanting to get high had already turned into a full-blown relapse. So yeah, that's around the time I lost control. And that's why they say not to date anyone when you're in early recovery. On one hand, yes, it's entirely possible for a romantic relationship to succeed when you're newly sober. However, studies show that most intimate relationships that occur within the first year of sobriety tend to take a turn for the worse. From what I'm about to tell you, I think you'll see why. It's just, if you knew what I was really up too, you'd know I wasn't actually sober anymore. Because what I haven't mentioned is how Aiden and I met. Here's what you need to know.
Do you ever feel flat? Dull. Lifeless. Uninspired. It's like, you're not necessarily sad. Because nothing actually happened to justify this type of darkness. It's just, you're not happy either. For me, when this happens —because it does, in fact, creep up, it literally feels like something in my brain is missing. Neurotransmitters probably. It's like sometimes, I want to cry. But I can't. And I don't actually want too. But it feels like I should. That's depression for you. Because it's not always sadness. I mean, yeah, it is. But it's so much more than that. Because it's not going to fit inside society's box. Because you can be laughing one second and wanting to stay in bed all day the next. It's like you want to do the things you love. The things that used to bring you joy, but you can't make yourself get there. So yeah, depression is misunderstood. Depression is also a serious mental illness that can interfere with a person's life. It can cause long-lasting intractable feelings of hopelessness. A loss of interest in shit you used to like is usually how it starts. But what does it actually feel like? Let's find out.
It was nearly 3 a.m. and I couldn’t sleep. I’d toss and turn and remanence. Unwillingly. I had gotten pretty good at this whole insomniac thing. For once though, I didn’t want to be good. But I was trying. I was trying a lot of things. I was trying to forget, trying to forgive, and trying my best to move on. It’s just, sometimes, your best isn’t enough. I know I shouldn’t be so hard on myself. But like I said, I was trying. So yeah. I wish I could tell you after I escaped things went back to normal. I wish I could tell you I woke up every morning with a new found motivation to get things right. And I wish I could say that I wasn’t still reeling the loss of everything in between. Because that would be a lie. I mean, I was free. That was true. I was living with my dad and his roommate’s family in Naples, Florida. I was safe. I was sober. But it was far from over. This is how it goes.
I've always been a sensitive person. And I've always been told that it's a bad thing —as if being sensitive makes me weak. Turns out, that's just not true. I get it though. Because a highly sensitive person (HSP), experiences the world differently than others. And I think it's because only 15 to 20 percent of the population are HSPs; so we're often misunderstood. I just wish I knew about this earlier. Because for the longest time, I was told there was something wrong with me. Friends of mine couldn't understand why I acted the way I acted. Heck. I didn't even know why. Until now. Because I recently found out that I have a personality trait called HSP (I'm a highly sensitive person). It's not a disease or a disorder. And it's not something learned; it's something I was born with —like in my DNA. And when I understood that, things finally made sense. Like when I first read a description about what it means to be an HSP, it was like looking at myself in the mirror. I never realized there was a specific term to describe my way of perceiving the world. It brought incredible relief to know I wasn’t the only one. So if you can relate to any of this, here are 13 signs you're a highly sensitive person (just like me).
I've always wondered what it would be like to look at myself and see what's actually there. When I stare back at my reflection in the full-length mirror that hangs from my bathroom wall, I don't see what you see. The eating disorder community calls this body dysmorphic disorder. I call it my every day. I've also wondered what it would be like to not compulsively obsess about my appearance. Because I'm not vain but my eating disorder would tell you otherwise. Even though I'm not "active" in it anymore, I find that it still creeps up. Because when I wake up each morning, I run to the scale. Depending on what reads back will, in fact, tell me how good of a day I will have. Slowly though, I'm learning that my value and self-worth doesn't change when or if my weight does. If anything, you become smarter when you finally see all of the lies about body size equaling happiness. But to me when I'm in the thick of it, it takes over. It's no longer about facts. It's not rational. Because most of us know it sounds crazy. Hell, it is crazy. But it's real and we simply can't help it. We can, however, control it or at least attempt too. Because I'm not lying when I say I don't see what you see. I never have. And for some reason, I still fear getting fat even though I've never been overweight a day in my life. So here are three reasons why I shouldn't fear any of that. And for the record, neither should you.
For the longest time, I thought I was crazy. And yeah, I definitely am. It's just, back then, during my active addiction days, I kept doing the same thing over and over again, which as you know is the definition of insanity. I was expecting different results. I was lonely and sad and I was all of those things because that’s who I thought I was. I mean, I did some pretty bad things. And I kept doing those bad things as a way to escape from the bad things I kept doing. And because of those bad things, I found myself in some ugly situations I wouldn't otherwise have been in. Because I was addicted to pills. I know it sounds crazy but, it seemed that all the awful things I told myself about myself were, in fact, true. Today, I know that's not the case. But I didn't understand that for a long time. Even today as a recovering addict, I can't erase the bad shit I did. That was me. It always will be. It's like yeah, I'm a different me, but I still get triggered. And when I'm triggered, it feels like it's happening all over again. I feel unsafe. I feel sick. And everything hurts. I'm sweating and I have to sit down. I can't numb the pain away. I couldn't even do that back then. Which got me thinking —if it happens to me, chances are, it happens to you too. The thing is, if you're aware of certain things like why you do the things you do —well, that can help you overcome them too. And we're all different. Each person will experience different symptoms at different times. Making it of extreme importance to know all of them. Here are four.
Sometimes happiness is staying in with a gluten-free pizza pie and Netflix. Like Netflix and chill but literally. Because most people search for happiness outside of themselves. I know I did and admittedly, sometimes I still do. But that's a mistake. And I'm trying to stop. Because happiness is something that you are. It comes from the way you think —not what you have or even who you have. It's all about our insides. Except, it's harder than you might think to break these patterns. Maybe you want to be happy but you keep waking up doing the same things that continuously make you miserable? The thing is, if we have time to feel like shit, complain and sift endlessly through notifications and newsfeeds, then we have time to meditate, journal, and do something about it. But normally, we just do what we're used to doing and the cycle goes on. Not today. Not anymore. So here's the final segment of my series on life lessons and seven things I think you should know.
I've always felt too much. I've always cared too much —that's just the way I was wired. But no one really knew that. To most, it probably looked like I didn't feel or care at all. I thought that was a good thing at the time. It wasn't. I just didn't understand why I was the way I was. Well, until now. Today, I know the reason I self-medicated for as long as I did. I had a bunch of mental health issues I could never make sense of. I struggled but I thought everyone felt this way? I never understood how those around me could make white knuckling look so good. I never felt normal and I probably never will but at least I'm doing something about it. So what is it that I'm doing presently that's different than yesterday? Well, I take antidepressants. There are times when I feel like they are working but then, there are moments when I don't know why I'm taking them at all. I say this because there are a bunch of side effects no one really wants to talk about. Here are seven.
Sometimes I feel as if I’m a failure at a disease I never asked for —something I could have never prevented. Most days, yeah. I look like everybody else. But I’m not. I want to feel normal. I don’t want to be different. But I am. Every single morning, I get out of bed just like you, but my routine is probably different than yours. I mean, how would your life change if you were diagnosed with a life-threatening illness that you were told was incurable? For me, I’m tired. I’m tired of having to prick my finger every time I want to leave the house or do anything for that matter. I’m tired of worrying that maybe one day, I will not wake up. Because yeah, there’s a chance, I won’t make it past a certain age because of some diabetic complication. Oh and, I’m tired just thinking about how tired I am. But no one really notices. No one actually wants to talks about it. But I do —even though, most can’t understand. No one understands because you don’t until you do. You don’t because you don’t have too —until it’s you. Well, now it’s me. I was never good at math but now I have to be. And even though, it's apart of my new normal, I don't think I'll ever get used to it. So this is what I want you to know.
I bet you know more people than you might think who have at least thought about committing suicide. I bet you wouldn't expect that I contemplated it myself. I actually tried to end my own life. So when I heard the awful news about Anthony Bourdain and Kate Spade, it hit home because I've been there and from the looks of it, I'm not alone.
Day one. He wanted me to want him. He wanted me to need him. He knew exactly what I wanted and needed a.k.a. a shit ton of pills. So that's exactly what he did. He knew as long as he kept feeding me pills, I'd continue accepting his lies. Except as it turns out, I didn't want to get high anymore. I had too. I didn't want to do those things he made me do but I needed too. And if I was going to do those things I didn't want to do, I needed my pills —and more than a few. So what was it like being barricaded and sexually degraded? Why was I so GOD damn persuaded? Well, here's the rest of rock-bottom number three in hopes, you'll understand why I'm still a little crazy.
I'm sure you know that drive alone can't beat addiction. For a while, I asked myself how do I want to want to stay sober? I knew I needed to but did I want too? Not really. Eventually, though, I did learn to want it bad enough. Looking back, I see it all so clearly —at least today I do. What they say about hindsight really is true. Except, it wasn't always like this. For a while, I let opioids control my entire life. They controlled me until I realized I didn't actually need them. It was a false freedom I mistakenly took for empowerment. I mean, I had this picture in my head of the great things I'd do. So yeah, I had a lot of drive but I had a lot of pressure too. Along the way though, I learned that it all comes down to how badly you want it. You can lead a horse to water but you can't make her drink it. Except, I'm asking you too. I want you to chug. I want you to get more out of life than simply white knuckling you're way to the end. I want you to enjoy this ride we call life —even if drive alone can't beat addiction. So this is where I tell you three ways you can learn to want this thing called recovery bad enough that it'll actually stick.
Regardless of the politics, it was still hard. In short, I hated being home. It was a shocking reminder of how messed up my family life had become and I didn’t want to deal with that or feel any of these feelings. I mean, what teenager would anyway? I remember wishing I was anywhere, but here —be careful what you wish for. At the time, I was a freshman in high school. I lived in an affluent suburb of South Jersey and up until this point, everything was fairly "normal" —except, a few somethings were about to go really wrong. It would later be revealed that my once perfect existence was really all smoke and mirrors. But let's start at the beginning.
Home —what was that? I hadn’t had one in what felt like forever. The only thing I had was fear. Except, today, I was an official resident at my very first drug treatment center. I made it through the intervention, the detox —both which I never thought would happen, and now this. I remember arriving in the druggy buggy (our way of saying a white van) directly from the county ran detox that I didn't want to admit, saved my life. I remember them searching me. For once, I had nothing to hide. I remember them finishing up the in-take process and taking me to my new home away from home. I was ready.
I always felt different. At least today I know why. It's just I sometimes still fear people think I'm crazy because of my insane insecurities. I mean, on one hand, I am but on the other, I'm just like everybody else. And yet, it doesn't make me feel any less alone. You may think I'm being weak but you never really knew me and you certainly don't know the person I've become. I want you to know but you never ask. If you did, this is what I'd say.
I was the girl hiding in her closet at 2:00 a.m. doing crunches because I couldn’t sleep. I was private to the point of fault. No one could see me work out and I hated the idea of anyone watching me eat. Except, when I finally made the decision to seek treatment, I knew I had to change my behavior. I needed to alter how I looked at fitness and my relationship with food. At the end of the day, I wanted to not only look good but feel good too. So, let's start at the beginning.